Events

2016


DEBRA International Congress 2016

22-25 September 2016

Venue Zagreb, Croatia

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ECRD 2016 : The European Conference on Rare Diseases & Orphan Products

26 to 28 May 2016 

Edinburgh, The UK

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2015


DEBRA BRAZIL:1st Congresso de epidermólise bolhosa

25-26 November 2015

Florianópolis - Santa Catarina, Brazil

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RARE 2015

26-27 novembre 2015

Montpellier, France

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World Orphan Drug Congress Europe 2015

11-13 novembre 2015

Genève, Suisse

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2014

 


 

 

5th World Orphan Drug Congress 2014

12-14 November 2014

Brussels, Belgium

 

The largest commercial gathering for rare disease industry stakeholders. With over 500 attendees expected from drug developers, patient groups, payers, HTAs and academia

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2nd IRDiRC conference

7-9 November 2014

Shenzhen, China

 

 

The Translational Science of Rare Diseases: From Rare to Care II
8-10 October, 2014
Herrenchiemsee, Germany

 

The meeting will bring together high-profile scientists from around the world and will focus on how basic science on rare diseases can have an impact for the development of novel therapeutic strategies. This conference will bring together a number of high profile speakers active in the field of rare disease research and translational medicine.

 

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DEBRA International annual congress 2014

 

Sep 19-21, 2014
Paris, France

 

DEBRA International congress 2014 aims to educate participants on internationals advances in treatment and diagnoses. The informations benefits to attendees will be extensive, with opportunity to share best practices with DEBRA delegates from more 48 countries around the globe, including paediatricians, dermatologists, researchers, and other health care professionals with EB expertise.

 

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7th European Conference on Rare Diseases & Orphan Products (ECRD 2014)
8-10 May 2014
Venue: Berlin, Germany

 

The European Conference on Rare Diseases & Orphan Products (ECRD) promises to be an enlightening forum for rare disease stakeholders across various disciplines across in European countries. It aims to cover research, development of new treatments, healthcare, social care, information, public health and support.

 

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The Commercialisation of Orphan & Rare Disease Drugs 2014

20–21 March, 2014
London, UK

 

This forum provides a unique opportunity to meet, network and hear from acknowledged industry experts. Discover untapped revenue streams in the blockbuster market - increase your bottom line and ensure the commercial success of your organisation. Explore the latest trends in pricing and reimbursement, and more importantly what lies beyond – from optimal business models to improving your marketing and sales strategy.

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2013

 


 

 

 

European Society of Gene and Cell Therapy (ESGCT)
25-28 October 2013
Madrid, Spain


Presentation of Alain Hovnanian: Gene therapy for recessive dystrophic epidermolysis bullosa: the GENEGRAFT European project and beyond
Alain Hovnanian and GENEGRAFT partners

Presentation of Rainer Low: New platform for the generation of clinical-grade retroviral SIN-vectors

 

 

2012

 


 

3rd Annual World Orphan Drug Congress

29th-30th November 2012
Geneva, Switzerland

 

The 3rd annual World Orphan Drug Congress is Europe’s leading forum for rare disease clinical advancement and strategic partnerships and collaborations.

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Epidermolysis Bullosa 2012, The DEBRA international Epidermolysis Bullosa Research Conference

5th November 2012

Marbella, Spain

 

Presentation of Alain Hovnanian and GENEGRAFT consortium: GENEGRAFT : an update on a European RDEB gene-therapy project

 

5th meeting of the EUCERD (European Union Committe of Experts on Rare Diseases)
19-20 June 2012
Luxembourg

 

The European Union Committee of Experts on Rare Diseases was formally established via the European Commission Decision of 30 November 2009 (2009/872/EC) . This committee is charged with aiding the European Commission with the preparation and implementation of Community activities in the field of rare diseases.

The EUCERD holds three meetings per year at the European Commission in Luxembourg. In addition, members regularly take part in working groups and conference calls on specific topics.

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2nd Nordic Conference on Rare Diseases

May 31 and June 1, 2012
Reykjavik, Iceland

 

The meeting will focus on co-operation to improve knowledge within the Nordic countries regarding Rare Diseases.

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6th European Conference on Rare Diseases & Orphan Products (ECRD)
23th to 25th May 2012
Brussels,Belgium

 

 

The European Conference on Rare Diseases & Orphan Products is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders - academics, health care professionals, industry, policy makers, patients’ representatives.

It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.

 

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1st International Congress on Research of Rare and Orphan Diseases
29 Feb-2 Mar 2012
Basel, Switzerland

 

The congress will bring together world leaders and young scientist from university and industry in Stem Cells, Cell Biology, Gene Therapy, Human Genetic and Therapeutic Applications to present cutting edge research, to discuss results and to exchange ideas.

Congress goals
- Promote research on rare and orphan diseases among the general public, industry and policy makers
- Bring together researchers and their knowledge
- Helping the understanding of other more common diseases
- Encourage clear insights positions identifiable from the scientific community in university and industry

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2011

  

 


RARE 2011-The Eurobiomed meeting on Rare diseases

November 2-4, 2011 Montpelier, France

 

‘‘Innovation and partnerships for patients’’
Initiated and organised by the Eurobiomed Competitivness Cluster and widely supported by local and national public and private partners, the Rare and Orphan Diseases Colloquium reached its objectives in 2009 by bringing together over 300 health professionals, thus making it a benchmark event in the fight against rare diseases in Europe.

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IRDiRC EU-USA Bilateral Workshop on Rare Diseases and Orphan Products

8-9 October 2011 Montreal, Canada

Two recent workshops, sponsored by he European Commission, Health Directorate, DG Research and Innovation, and the US National Institutes of Health, Office of Rare Diseases Research (ORDR), have been held with a focus on the development of international initiatives on research of rare diseases. One of the suggested initiatives is the International Rare Diseases Research Consortium (IRDiRC). The goals of the Consortium are to deliver by 2020, 200 new therapies for rare diseases and diagnostic tests for most rare diseases. To reach these goals, utilizing available resources and adhering to coordinated research efforts are keys to success in the research of rare diseases and the development of orphan products and diagnostics.

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The European Conference on Rare Diseases & Orphan Products is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders - academics, health care professionals, industry, policy makers, patients’ representatives.

It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.

Read more...